"If you know someone who has lost a child or anybody who's important to them, and you're afraid to mention them because you think you might make them sad by reminding them that they died, they didn't forget they died. You're not reminding them. What you're reminding them of is that you remembered that they lived, and that's a great, great gift" - Elizabeth Edwards

"The deep hurt is the mirror image of the deep joy that still awaits you." - Bruce C. Hafen

Other Potter’s Syndrome Blogs

After we found out about Oliver’s diagnosis, I felt so alone. I had never heard about Potter’s syndrome before. I felt like I was the only one in the world that was going through this. Luckily I was able to find an online support forum for women who is carrying a pregnancy with poor or fatal diagnosis. In this forum I was able to meet lots of other moms who were going through the same thing I did. It was heartbreaking, but very helpful for me. I was able to get in contact with some other women who were carrying a baby with Potter’s or already had carried one. I was able to read other moms blogs about their experiences. Again, it broke my heart, but it made me feel less alone. Here are some of the many blogs that inspired and helped me during that hard time, and still do.

From Under the Weeping Willow

Christian Henry

Real Life: A MN Mom

Eli’s Valley

Tyler’s Story

Our Family’s Journey

One Response to “Other Potter’s Syndrome Blogs”

  • Mindy Johnson:

    I know exactly how you feel and what you went through. I also lost my son Zaden Alexander to Potter’s Syndrome. It’s an everyday struggle. I’m having a pretty hard time still trying to understand why this happened, and trying to cope with the loss of my beautiful baby boy. I too feel alone, even though I am married. I feel as though we both feel differently about the passing of our son. It hurts everyday…and so far the hurt hasn’t eased up…and it was very hard to describe to a 6 year old what had happened and why we can’t bring the baby home with us. It’s very heartbreaking.

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